Hello to all. Each day I have a deep desire in these updates to give you some good news. I guess one thing that has been good these past few days is that he is sleeping better through the night. Other than that, in the daytime he has regressed significantly in what he is able to do and his spasms have been non-stop again and painful. PT, OT, and ST have all pulled back a lot on what they are trying to do with him because he is just in too much pain. Our son does not have one comfortable waking hour in his day - not one.
They are going to start him on some steroids again because they are concerned the swelling in his brain may be increasing again instead of decreasing. As you can imagine, we are discouraged. We still put our trust in the One Great Physician and we lay our son at his feet.
PRAY FOR THE SWELLING TO GO AWAY ONCE AND FOR ALL AND FOR ALL SPASMS TO COME TO AN ABRUPT END.
Robbie continues to be a trooper but it is wearing him down and Tanja and I are well-worn as well. My wife has been more than amazing throughout. The strength of the Lord is evident within her with everything she does for our son, for me, for those around us.
Our daughters are up in Fayetteville this weekend and I pray that they are having a good and refreshing time with friends and their church family.
We continue to be blessed in the knowledge that he is covered in prayer all over this world - from San Francisco to South Africa, from Tanzania to Tibet. When my father was Robbie’s age, he lived in Leede, Oklahoma. It has been a good half-century plus since then but he just got a call from the son of his barber when he was a kid. Seems a lady in Fayetteville told a friend in Bartlesville about Robbie. She e-mailed an acquaintance in Wisconsin who shared with another friend in Tulsa who was in a prayer meeting with the wife of this man who called. Amazing. May God bless the faithful prayers of those of you who have been made righteous by the blood of Jesus Christ.