Our son had a better evening though still with continual discomfort and muscle spasms. He is sleeping-in on this Sunday morning and probably needs it. They are giving him a day off of his therapies so maybe this will be a day of rest.
You may remember a story I shared in a past update about a boy who wanted to have a birthday party where people brought money for Robbie instead of gifts. That story was a bit inaccurate. It was not A boy, it was TWIN BOYS Robbie’s age. Well, they had their party and then the family came up yesterday and visited us bringing an envelope of $250 in it along with cards they had made. Their younger twin sisters also made cards and gave him a stuffed animal as well.
When Robbie first heard about the generosity of these boys, he was so touched he wept and spelled out “God bless them”. He was even more touched by their visit. The boys were great as they told Robbie they hope he gets better. The mom said that all of their friends were very excited to be able to help as well and the birthday party was a lot of fun.
After they left Robbie just wept again and wanted Tanja and I to get close and spend some time in prayer together. He kept signing “Thank you” then spelling G-O-D over and over again. He then wanted to sing some praise songs which we did for quite some time. It is difficult to sing without getting choked up as I look at my son lifting his arms in praise and refusing to let them go down even though I can tell his muscles are seizing up. I see the pain streaking across his face and yet he was looking up with a smile on his face, making the moaning sounds of praise as best as his disabled vocal chords could make. I told him that God is smiling down on his beautiful, beautiful offering.
I remember in High School football when we were sore from the first day of “full contact”. The next few days we were encouraged to keep “playing through the pain” until we were toughened up enough not to hurt anymore. I wonder what our Father thinks as Robbie, without any prodding from us, is stubbornly and steadfastly praising through the pain.
Lord, please heal your child. He is obviously yours.
Thank you for reading these updates and, if they touch you and you begin to feel some of Robbie’s burden, I ask that you keep “praying through the pain”.