Greetings and good morning,
It is 9:30am on Tuesday morning and our son has been sleeping since 3:30am - PRAISE GOD FOR REST!!
My brother Robbie said that, with the muscular workout he has been getting this past week, he could sleep for two days straight and it’d be good for him. I agree. We also had a good rest last night as my niece Sarah and her husband Justin watched Robbie. They are both nurses! Right now my wife is beside me reading her Bible and my brother is across from me reading “Irresistible Revolution”. Yesterday was better. Of course, “better” is a relative term as he is still doing 30 - 40 second waves of spasms throughout the entire day.
They started him on a new treatment yesterday evening, Immuno-Globulin, which can have some side effects such as rash, fever and head-aches. Before he got it, we prayed over him and the glass IV bottle it came in. They checked his vitals every 15 minutes while he began it and he has no visible side effects. The neuro doctor this morning said he has taken the IG better than any patient they’ve ever had.
He is an amazing young boy. Even in his medicated state and the pain of his muscle seizures, he seeks to comfort and hug those around him. Thank you for your faithfulness in lifting this young man of God up to Jehovah Rafah. Yesterday, my Malaysian friend Philip said as he was praying for me, “God you are both loving and strong. You are NOT strong and without love and you are NOT loving without strength. You ARE loving and you ARE strong and able to do all things.” This is our God and we believe in him.
Bless you all, Ken
P.S. Well, he is awake and is really having a hard time again - pretty severe pain right now. Again, two steps forward, one step back. Keep praying. Thanks.
Most of the pictures of these early updates are from a time a couple of weeks later, after he started doing a little bit better. (Emphasis on "little")