It turns out that not all Mondays are bad. This has been, by far, our best day since arriving at the hospital two and a half weeks ago. His spasms are very minimal and he has rested most of the day. When he does wake up he is very calm and acts like he is on a lot of heavy medication (which he is).
We actually woke him up so he could do physical therapy for about 20 minutes and then some speech therapy. He did quite well, he was able to, with assistance sit up and hold his head up. He stood and with support walked to the window and back. His buddy, Gabriel Peters, visited while he was doing this and Robbie was hugging him and not wanting to let go. He cried tears when Gabriel left. This is a good thing as he has not had tears for two weeks and we have been having to put eye drops in his eyes. He is very aware now that he does not have normal abilities so pray for his emotions.
PRAY FOR HIS ABILITY TO MOVE HIS TONGUE AND LIPS AND TO SWALLOW. As soon as he can do these things, he can begin to drink, eat and possibly get rid of his IV and feeding tubes. What a blessing that would be! He would also be able to begin the process of relearning to speak. Everyone who knows Robbie knows how passionate he is about being able to, through speech, share his knowledge with anyone around him. :-)
It is abundantly evident that the body of Christ has rallied around us in amazing ways and we continue to be powerfully moved by the love that God’s family is showing to us. Please continue to lift us up and pray for strength to persevere with full faith in the God of all good things.
Thank you and God bless you all,
Ken